AHR, according to doctors, may have:

1. Crohn's Disease (CD) - Crohn's is part of a group of conditions including ulcerative colitis labeled Inflammatory bowel disease (IBD) 
2. Irritable Bowel Syndrome (IBS is classified as a syndrome with a group of symptoms)

3. Duodenitis  

4. Uveitis  

5. Raynaud's Syndrome

6. Mild Celiac Disease 

7. Anemia (Iron-Deficiency)

8. Losing Blood Somewhere  

9. Vasculitis found in esophagus and in colon from a endoscopy and colonoscopy 7/20 2021 

AHR has some symptoms of the following: 

1. Diverticulosis 

2. Rheumatoid Arthritis or Enteropathic Arthritis (EnA) (Collar bone symptoms in high school) 

3. Lupus

4. Allergies (Food)

5. Reflux 

6. Fibrillary glomerulonephritis (FGN) The most common form of treatment was steroids, with or without a second agent, including most notably cyclophosphamide or rituximab.

7. Nephrotic syndrome (NS)  (See "Renal Manifestations of inflammatory Bowel Disease" cited below in "Other Resources")

8. Jejunitis (Ulcerative)

9. Ascites (See "Ascites in a Young Woman With inflammatory Bowel Disease" cited below in "Other Resources")

10. Autoimmune Hemolytic Anemia (See "Coombs-Negative Autoimmune Hemolytic Anemia In Crohn's Disease")

11. Secondary Amyloidosis (See "Secondary amyloidosis in Chron's disease" and  "Amyloidosis in Inflammatory Bowel Disease: A Systematic Review of Epidemiology, Clinical Features and Treatment" cited below in "Other Resources")

 

 

AHR Hospital and Doctor Visits 

 

July 20, 2021 endoscopy and colonoscopy 

May 22, 2021 NCH Baker Hospital (Naples Community Hospital, 350 7th St. N., Naples, FL 34102 Phone 239/624-5000) https://nchmd.org/

October/November 2020 No hospital, flare Up

April/May 2019  no hospital, flare up

August 2018 flare up on Marco but did not go to hospital

TBA 2018 hospital visit (Legacy) stayed four nights

April 17, 2017 Legacy Emanuel Medical Center, Portland, Oregon. Stay four nights. 

 

Crohn's Disease

 

Crohn's disease care at Mayo Clinic 

 

Mayo Clinic Crohn's disease doctors - 27 Mayo Clinic doctors treat Crohn's disease at Jacksonville or Phoenix or Rochester

 

Five doctors at the Mayo Clinic in Jacksonville treat Crohn's disease 

 

One doctor at the Mayo Clinic in Phoenix treats Crohn's disease 1 woman

 

Twenty doctors at the Mayo Clinic in Rochester treat Crohn's disease  5 women

 

Hematuria (the presence of blood in the urine)

 

Blood in urine (hematuria) Mayo Clinic

 

''28-Year-Old Man With Crohn Disease and Hematuria" Mayo Clinic Proceedings

Nephrolithiasis is the most commonly associated renal disease in patients with IBD. Patients with IBD have a 12% to 28% incidence of nephrolithiasis compared with 5% in the general population.1 Nephrolithiasis tends to be more common in patients with Crohn disease and a history of ileocolonic disease, as in this patient. 

 

Urology: O'Brien Urology Research Center - Addressing critical questions in nephrolithiasis Mayo Clinic five doctors - one in Jacksonville and four in Rochester

 

Lupus nephritis Mayo Clinic

 

Mayo Clinic's 47 Urology Doctors - Nine doctors in Jacksonville, Ten in Phoenix and Twenty-eight in Rochester

 

Uveitis

 

Uveitis Mayo Clinic 

 

Three Mayo Clinic doctors who treat uveitis

 

Celiac disease

 

Celiac disease Mayo Clinic 

 

Seven Mayo Clinic doctors who treat celiac disease

 

Anemia

 

Anemia Mayo Clinic

 

Mayo Clinic Anemia Doctors 7 doctors - Jacksonville 2 doctors, Phoenix 2 doctors  and Rochester 3 doctors

 

Vasculitis

 

Vasculitis Mayo Clinic 

 

Vasculitis Diagnosis Mayo Clinic 

 

Mayo Clinic Vasculitis Doctors 33 doctors - Jacksonville 5 doctors, Phoenix 5 doctors  and Rochester 24 doctors

 

Gastroenterology and Hepatology

 

Gastroenterology and Hepatology Mayo Clinic

 

Mayo Clinic Gastroenterology and Hepatology doctors  158 doctors - Jacksonville 33 doctors, Phoenix 34 doctors and Rochester 90 doctors

 

Endocrinology Mayo Clinic - Relationship between nutrition and human disease

 

Endocrinology Mayo Clinic

 

Mayo Clinic Endocrinology doctors  62 doctors - Jacksonville 8 doctors, Phoenix 7 doctors and Rochester 47 doctors

 

Glomerulonephritis - Inflammation of tiny filters in the kidneys

 

Glomerulonephritis Mayo Clinic

 

Mayo Clinic Glomerulonephritis doctors - 3 doctors - Jacksonville 1 doctor, Phoenix 1 doctor and Rochester 1 doctor

 

 

Other Resources

 

Regarding Crohn's Disease and Celiac disease see the "Publication" titles for Dr. John R. Cangemi - Gastroenterologist  and internist at Jacksonville 

 

Renal Manifestations of inflammatory Bowel Disease

 

Secondary amyloidosis in Chron's disease 

 

Amyloidosis in Inflammatory Bowel Disease: A Systematic Review of Epidemiology, Clinical Features and Treatment

 

Ascites in a Young Woman With inflammatory Bowel Disease

 

Dr. Christopher Sletten from Mayo Clinic Discussing Central Sensitization Syndrome (CSS) on YouTube

at https://www.youtube.com/watch?v=8defN4iIbho.

 

ADL's (Activities of Daily Living) six standards: bathing, dressing, toileting, transferring (moving to and from a bed or a chair), eating and continence. 

 

NCH Healthcare System - Baker Hospital 350 7th Street North downtown Naples and NCH North Naples 11190 Health Park Blvd.  Together a 716 bed system treating over 40,500 patients a year.  A member of the Mayo Clinic Care Network since 2012.  

• #1 in Florida for Cardiac Services and Cardiology Services
• Top 5% nationally for Overall Clinical Excellence
• Top 5% nationally for Women’s Health Services and Women’s Cardiac Services
• Top 5% nationally for Overall Cardiac Services
• Joint Commission Certifications for Stroke, Total Hip and Total Knee Replacement
• 700 independent physicians
• 40,500 patients a year
• August 2012 NCH became a member of the Mayo Clinic Network which allows NCH physicians to access the latest Mayo Clinic expertise and clinical care through the use of electronic care reference and communication tools. NCH was selected after a rigorous review process based on quality, service and operational criteria. NCH now has access to "AskMayoExpert and eConsultants. NCH will remain an independent healthcare provider. 

 

Sandra C. Hill (b. 1945) Medical Information 

October 2003 Dr. Wendy Humphrey suggested I see an endocrinologist after she discovered lumps in my throat. HT and I met with Dr. Todd Brodie 10/8/03 to discuss surgery to remove my cancerous thyroid. 10/29/03 Dr. Kenneth Cournington performed the thyroidectomy followed by radioactive iodine treatment 6 weeks after surgery. Two  days of isolation. Synthroid medicine treatment for life taking 1 pill a day. Every six months bloodwork and appointment with Dr. Brodie. Yearly ultrasound.

 

Faith, my youngest sister, has had her parathyroids removed, but doesn’t take Synthroid. Maralane, sister #2, takes Synthroid for a hyperactive thyroid. Aunt Vivian, my father’s sister, had her thyroid removed; Normie, my cousin, has a hypoactive thyroid.

 

Carlisi Family Medical History

June 27, 2021

Family Member Health Issue

1. Stephen Carlisi Congenital heart valve leak; high blood pressure

2. Venera Carlisi Chase, Stephen’s sister Colon cancer

3. Vivien Carlisi Cometta, Stephen’s sister Thyroid cancer

4. Mary Carlisi Fino, Stephen’s sister Parkinson’s

5. Aileen Carlisi Vail, Stephen’s sister Colon cancer

6. Carmela Salvaggio Carlisi, Stephen’s mother Colon cancer & lip cancer

7. Sandra Carlisi Hill, Stephen’s daughter Thyroid cancer; hypothyroidism; High blood pressure & cholesterol

 8. Faith Carlisi Skelton, Stephen’s daughter Hyperparathyroidism removed one side. High cholesterol

 9. Maralane Carlisi Brogan, Stephen’s daughter Hypothyroidism

10. Adrienne Hill Roark Crohn’s Disease+

11. Normie Polizzi, Stephen’s niece Hyperthyroidism

12. Lena Frattalone Mastro, Mary Carlisi’s sister Hyperthyroidism

13. Mariann Mastro Christman, Lena’s daughter Hyperthyroidism

14. Henry Tyler Hill Amyloidosis

15. Stephanie Carlisi Swartz, Stephen’s daughter High blood pressure & cholesterol

 

Henry T. Hill (b. 1943)  Medical Information

 

Amyloidosis Al 

A routine endoscopy in June 2018, because, since childhood, I have a stomach valve that doesn't close all the time and have reflux, found polyps in my duodenum which showed amyloidosis. With no symptoms at age 75, I began my Mayo Clinic journey. July 30, 2018, I met with Dr. Taimur Sher at the Jacksonville Mayo Clinic and began treatment. After many tests, Dr. Sher prescribed chemo of dexamethasone 20 mg and Velcade once a week which I could receive near home in Naples, Florida at the Florida Cancer Specialists. Dr. Steven Newman at Florida Cancer Specialist joined my amyloidosis team, and with Dr. Sher monitored my once a week thirteen chemo treatments from September 17, 2018 to December 10, 2018. Dr. Sher and Dr. Newman gave me Christmas holidays off from chemo. I had three more chemo treatments January 7, 2019, January 14, 2019 and January 21, 2019 and have no had any chemo treatments since to date May 26, 2021 and just receive monitoring every three months alternating with Dr. Newman in Naples and Dr. Sher in Jacksonville. 

 

Peripheral Neuropathy

December 18, 2018 after thirteen chemo treatments I developed peripheral neuropathy in my lower legs and feet. From December 18, 2018 to the end of May, 2019 I used pain and sleep medication and mindfulness to reduce peripheral neuropathy pain to just "weird nerve sensations." Gabapentin from December 24, 2018 to Hydroco/APAP 325 mg four a day and Zolipidem 10 mg (Ambien) and later Dr. Palmer prescribed custom scripted Amit/Keta/Lido 2/5/5% cream. I went from four Hydroco and day to three to two to one and to on half to none. May 2, 2019 no more ambien. May 27, 2019 no pain pills to date, May 26, 2021. 

 

February 11, 2019, I saw Dr. Scott C. Palmer at the Jacksonville Mayo Clinic. Dr. Palmer accepted the Hydroco and Zolipdem prescriptions from Dr. Newman and added custom scripted Amit/Keta/Lido 2/5/5% cream and physical therapy which I took from April 26, 2019 to May 22, 2019. 

 

Bladder (blood in urine) Dr. Timothy D. Lyon (Jacksonville Mayo Clinic) preformed a cystoscopy, bladder biopsy and fulguration 7/23/2020

July 10, Dr. Timothy D. Lyon for a Cystoscopy at the Jacksonville Mayo Clinic which found "a bulbar urethral stricture that was able to be traversed with gentle pressure from the scope. The prostate was elongated and obstructing with trilobar hyperplasia. Upon entry into the bladder it was examined systematically. There were no papillary masses and no suspicious areas of erythema. A left sided narrow diverticular neck was seen, but this could not be examined due to patient discomfort. Bilateral ureteral orifices were not seen. On retroflexed view, there was a large intravesical protrusion of a median lobe." From Dr. Lyon's 7/10/2020 notes. 

 

Back for more tests and surgery July 22, 2020 tests and July 23, 2020 surgery. Dr. Lyon found, "Findings1. Mild distal bulbar urethral stricture2. Trilobar prostatic hyperplasia with large median lobe3. Left bladder wall diverticulum with indeterminate 5mm erythematous patch posterior wall, biopsied. Procedure: "There were no papillary masses and no areas suspicious for bladder cancer. In the left lateral wall was a relatively narrow necked bladder diverticulum. The interior of this was examined carefully. On the posterior wall of the diverticulum was a small, approximately 5 mm erythematous patch of indeterminate nature. We opted to biopsy this given the patient's history of amyloidosis." Dr. Lyon evaluated and assessed the following comorbidities: #1 Hematuria, #2 Amyloidosis (HCC), #3 Multiple Myeloma Not Having Achieved Remission, (HCC) #4 Preoperative Exam, #5 Hypertension Essential Primary, #6 Hyperlipidemia, #7 Left Anterior Fascicular Block and #8 Neuropathy Peripheral. 

 

I have had six kidney stones. My sister had ten kidney stones. Our parents never had kidney stones. 

I have glaucoma and take latanoprost 0.005% drops. I also take omeprazole Dr 20 mg, simvastatin 40 mg and losartan 50 mg.  Dr. Lyon July 22, 2020 prescribed finasteride 5mg and tamsulosin0.4 mg. 

 

Research Articles

 

Crohn Disease: Epidemiology, Diagnosis, and Management - Mayo Clinic Proceedings full text 2017 Joseph D. Feuerstein and Adam S. Chelfetz

 

Crohn's disease of esophagus, stomach and duodenum 2019 Full text

 

Crohn's Disease of the Foregut 2015

 

Autoimmune Thyroid Diseases Concomitant with Crohn’s Disease and Ulcerative Colitis 2015

 

Renal aspects of amyloidosis 2012

 

Fibrillary glomerulonephritis: a report of 66 cases from a single institution (Mayo Clinic Rochester) 2011

 

New Aspects of Fibrillary and Immunotactoid Glomerulonephritis 2019

 

Renal Involvement in Inflammatory Bowel Diseases 2016

 

Glomerulonephritis Associated with Inflammatory Bowel Disease 1990

"Considered collectively, the findings stated in the case report suggest that the coincidence of inflammatory bowel disease and glomerulonephritis represents a true association and a previously unappreciated extraintestinal manifestation of inflammatory bowel disease."

See also:  Jensen EJ, Baggenstoss AH, Bargen JA. Renal lesions associated with chronic ulcerative colitis. Am J Med Sci 1950;219:281-290

 

Candida (fungus) Wikipedia

 

Candida albicans adaption to host microenvironments drives immune evasion from Umea University Sweden 79 pages 2018

 

Adaptive immune responses to Candida albicans infection  2015

 

AH info